I don't even know what to title this post. We're aggravated. The oncologist's office has known for a week what the chemo plans are for Ray, and they've had a written referral for two days, but they haven't had a phone call referral for the receptionist, so she still refuses to make us an appointment. And Johns Hopkins can't help us out on this issue because they're closed for the holiday.
Personally, I feel like I'm on the wrong side of a sound-proof glass wall, and am banging it is hard as I can, jumping up and down and people just look at me curiously as though I'm more absurd than anything else.
It's aggravating how powerless I feel. It reminds me very much of our adoption process; only right now the consequences are more dangerous and immediate. I kept thinking if we could just get into surgery, if we could just keeping hounding people for a surgery date, then we could finally get in somewhere, and when we had the most hope, (at Johns Hopkins), we got a curve ball of chemo and just slipped back on the waiting docket again.
Waiting is NOT pleasant, and unfortunately, is an avenue of fear.
The good side is that it's fueled a good amount of energy for the treadmill.
Still, I'm contemplating going to the oncologist's office and sitting in the waiting room until they give an appointment. Does that seem crazy? Because if it doesn't, I'll go there this afternoon.
I wouldn't blame you if you did go to the office...It seems that these days you have to manage so much of your own care, and remind doctors' offices you're still waiting, etc otherwise you'll slip through the cracks..
ReplyDeleteI'm praying for wisdom for you all
Love, Marcie
Ben was right...be specific in your prayerss. We are pleased to hear that you have an appointment with the oncologist.Then you can get this "healing journey" on the road and WIN this battle. We believe in you, your strong faith, your physical stamina and strength and in prayer.
ReplyDeleteDavid and Gaye